Richard's story about his experience of mental illness is a compelling read.
Showing posts with label bipolar. Show all posts
Showing posts with label bipolar. Show all posts
Thursday, February 10, 2011
Richard's Story
The link will take you to an article from the National Post, one of two national daily newspapers in Canada. The author writes of his friendship with a man who experiences bipolar
. In the article, the make reference to Bell Canada, a major telecommunications company in Canada, who yesterday (Feb. 9) donated $0.05 to mental health for every text message and long distance call made that day.
Richard's story about his experience of mental illness is a compelling read.
Richard's story about his experience of mental illness is a compelling read.
Labels:
bipolar,
Canada,
National Post
Thursday, July 29, 2010
GUEST BLOG: Do Labels Hurt or Help Our Children? You Be the Judge
Parents of children with invisible, or hidden, disabilities often struggle with many aspects of parenting. Not only do they have to maneuver through medical, educational and family situations (usually with no prior experience), but they also ponder the question of whether to label or not to label. If the disability is severe enough, a label seems like the kind thing to do. A title explains why Johnny can't read, can't sit still, can't do math and so on. It affords children the help that they need to succeed.
These words can open the doors to rights through the ADA (Americans with Disabilities Act)
and Civil Rights Section 504. A diagnostic code, or category, allows insurance agencies to authorize (or not) payment for treatment. One is often backed into the corner and rendered helpless without all of these things.
One worries whether labeling Johnny as bipolar, ADHD or schizophrenic will create more stigma. They wonder if someday Johnny will outgrow this.
In an ideal world, people would recognize that Johnny might not be able to read, but he can work circles around kids in the math class, dance and sing and paint masterpieces.
Teachers would be able to teach to small groups of children with all kind of skill levels; grandparents would love every grandchild the same; parents would have a magic wand to wave over their child and make him or her absolutely capable in every category, doctors would have a magic solution to every mental health problem.
Until we get our magic wands, my wish is for parents to feel confident that they are doing the best that they can, using the tools that are available in hopes that tomorrow will be a better day. Our best is all we have to give.
Guest blogger today is Rebecca Randall, a family member who volunteers as facilitator for the Epilepsy Support Group that meets, 6:30 p.m., on the 4th Thursday of the month at the OSU/COTC Warner Library. Becky is the mother of two adult daughters, and was a longtime volunteer with MHA, facilitating a CHADD (Children and Adults with Attention Deficit Disorder) support group that met for 11 years in Newark. Becky is also former Coordinator of the Pathways Crisis Hotline and Information Center and a former Crisis Response Specialist.
These words can open the doors to rights through the ADA (Americans with Disabilities Act)
One worries whether labeling Johnny as bipolar, ADHD or schizophrenic will create more stigma. They wonder if someday Johnny will outgrow this.
In an ideal world, people would recognize that Johnny might not be able to read, but he can work circles around kids in the math class, dance and sing and paint masterpieces.
Teachers would be able to teach to small groups of children with all kind of skill levels; grandparents would love every grandchild the same; parents would have a magic wand to wave over their child and make him or her absolutely capable in every category, doctors would have a magic solution to every mental health problem.
Until we get our magic wands, my wish is for parents to feel confident that they are doing the best that they can, using the tools that are available in hopes that tomorrow will be a better day. Our best is all we have to give.
Guest blogger today is Rebecca Randall, a family member who volunteers as facilitator for the Epilepsy Support Group that meets, 6:30 p.m., on the 4th Thursday of the month at the OSU/COTC Warner Library. Becky is the mother of two adult daughters, and was a longtime volunteer with MHA, facilitating a CHADD (Children and Adults with Attention Deficit Disorder) support group that met for 11 years in Newark. Becky is also former Coordinator of the Pathways Crisis Hotline and Information Center and a former Crisis Response Specialist.
Labels:
ADHD,
Americans with Disabilities Act,
bipolar,
schizophrenia
Monday, March 8, 2010
Declarations
I recently tried to apply for life insurance. I am a person who experiences bipolar disorder and OCD and had always been told that I was ineligible for life insurance. Recently, however, I heard that some insurers would consider me as a candidate.
I thought that I would surprise my husband and apply for life insurance. I would like to be able to leave him with a little money in case of my death, to cover expenses. This is the wish of the average American, to have adequate life insurance coverage for their loved ones. I am not now, nor have I ever been suicidal. I have never been hospitalized for reasons related to my mental health.
I contacted an agent who represents several carriers and who had solicited me online. I did not tell anyone about my plan, because I wasn’t certain I would qualify. I had to fill out a pile of paper work and submit to medical tests, which I find very stressful. I was upfront about my medical history and was told that my bipolar disorder might raise my premiums, but would not necessarily block me from receiving insurance. The submission process took four months, with several emails from the insurer requiring more information.
Finally, I received a call last week telling me that I had been rejected “because of my eating disorder.”
I do not have an eating disorder. I have never been diagnosed, nor treated, for an eating disorder at any time. I went to see my psychiatrist, who confirmed that there is no past record, nor current diagnosis, of an eating disorder in my files. This was not the diagnosis of my general practitioner, nor the two gastro doctors and the internist, I saw in Columbus.
I have been physically ill for the last year and did seek attention from several specialists who ruled out a number of illnesses. Each doctor passed me along to another for more tests, until I ended up at the Cleveland Clinic. There I was subjected to another battery of tests, until my gastroenterologist admitted that she did not know what was wrong with me, and suggested I see a neurologist to address the other, non-gastric symptoms.
Somewhere along the way, someone decided that my symptoms included “psychogenic vomiting.” This archaic term means that I am vomiting by choice. Psychogenic: (1) Of mental origin or causation.psychogenetic. (2) Relating to emotional and related psychological development or to psychogenesis. A phrase I hear all too often –“it’s all in my head.”
This change in diagnosis (and attitude), came after the local neurologist, who I saw in January of 2010, saw my medical history. This is not the first time this has happened. The doctor at the Cleveland Clinic was very dismissive after she learned of my psychiatric history. I have walked away from this process feeling angry and exploited.
Time and time again, I am frustrated by medical personnel who only see me as a mental illness diagnosis, not as a person. Everything I say immediately becomes suspect, I must be delusional and unreliable. My physical illness must be a result of my mental condition. If I have questions about my treatment, I am oppositional. Every thing I say or do confirms their diagnosis that I am simply crazy. My psychiatrist is never consulted.
The first time I visited an E.R. after my initial bipolar disorder diagnosis, I was experiencing severe vomiting and dehydration. I was confronted by a doctor who had not learned that patients with mental illness are not deaf, nor unable to speak for themselves. Once he had seen my medication list, that doctor spoke only to my husband, not to me, and assumed that I was unable to make my own health care decisions. He later spoke to my sister (a hospital employee, who did not know about my illness), and asked her how long I “had been crazy?” When I was admitted, my physician made notes to my record commenting that my mental illness was a basis for not consulting me on my treatment, although there was no indication of inappropriate behavior on my part. My own physician was never consulted, and I was denied access to all of my regularly prescribed medication for four days, resulting in serious physical withdrawl.
On another visit to the ER caused by a medication-induced seizure, my explanation was met with disbelief. I was suspected of drug-seeking behavior and a lack of judgment. It was not until my sister, a hospital administrator, was called, that her authority changed the attitude of the staff.
Incidents like these are not, unfortunately, uncommon. I hear about them from consumers every day. Insist that your care provider speak to you directly and include you in creating your health care plan. I recommend that everyone who experiences mental illness carry a list of all medications with them and a copy of your Mental Health Advanced Directive.
A Mental Health Advance Directive offers a clear written statement of an individual's medical treatment preferences or other expressed wishes or instructions. It can also be used to assign decision-making authority to another person who can act on that person's behalf during times of incapacitation.
I plan to appeal the decision to deny my life insurance coverage. It has taught me an important lesson about keeping current on what is in my medical files. Learn from my experience and keep up to date on what is in your files.
--Kristen Frame
Compeer Coordinator
I thought that I would surprise my husband and apply for life insurance. I would like to be able to leave him with a little money in case of my death, to cover expenses. This is the wish of the average American, to have adequate life insurance coverage for their loved ones. I am not now, nor have I ever been suicidal. I have never been hospitalized for reasons related to my mental health.
I contacted an agent who represents several carriers and who had solicited me online. I did not tell anyone about my plan, because I wasn’t certain I would qualify. I had to fill out a pile of paper work and submit to medical tests, which I find very stressful. I was upfront about my medical history and was told that my bipolar disorder might raise my premiums, but would not necessarily block me from receiving insurance. The submission process took four months, with several emails from the insurer requiring more information.
Finally, I received a call last week telling me that I had been rejected “because of my eating disorder.”
I do not have an eating disorder. I have never been diagnosed, nor treated, for an eating disorder at any time. I went to see my psychiatrist, who confirmed that there is no past record, nor current diagnosis, of an eating disorder in my files. This was not the diagnosis of my general practitioner, nor the two gastro doctors and the internist, I saw in Columbus.
I have been physically ill for the last year and did seek attention from several specialists who ruled out a number of illnesses. Each doctor passed me along to another for more tests, until I ended up at the Cleveland Clinic. There I was subjected to another battery of tests, until my gastroenterologist admitted that she did not know what was wrong with me, and suggested I see a neurologist to address the other, non-gastric symptoms.
Somewhere along the way, someone decided that my symptoms included “psychogenic vomiting.” This archaic term means that I am vomiting by choice. Psychogenic: (1) Of mental origin or causation.psychogenetic. (2) Relating to emotional and related psychological development or to psychogenesis. A phrase I hear all too often –“it’s all in my head.”
This change in diagnosis (and attitude), came after the local neurologist, who I saw in January of 2010, saw my medical history. This is not the first time this has happened. The doctor at the Cleveland Clinic was very dismissive after she learned of my psychiatric history. I have walked away from this process feeling angry and exploited.
Time and time again, I am frustrated by medical personnel who only see me as a mental illness diagnosis, not as a person. Everything I say immediately becomes suspect, I must be delusional and unreliable. My physical illness must be a result of my mental condition. If I have questions about my treatment, I am oppositional. Every thing I say or do confirms their diagnosis that I am simply crazy. My psychiatrist is never consulted.
The first time I visited an E.R. after my initial bipolar disorder diagnosis, I was experiencing severe vomiting and dehydration. I was confronted by a doctor who had not learned that patients with mental illness are not deaf, nor unable to speak for themselves. Once he had seen my medication list, that doctor spoke only to my husband, not to me, and assumed that I was unable to make my own health care decisions. He later spoke to my sister (a hospital employee, who did not know about my illness), and asked her how long I “had been crazy?” When I was admitted, my physician made notes to my record commenting that my mental illness was a basis for not consulting me on my treatment, although there was no indication of inappropriate behavior on my part. My own physician was never consulted, and I was denied access to all of my regularly prescribed medication for four days, resulting in serious physical withdrawl.
On another visit to the ER caused by a medication-induced seizure, my explanation was met with disbelief. I was suspected of drug-seeking behavior and a lack of judgment. It was not until my sister, a hospital administrator, was called, that her authority changed the attitude of the staff.
Incidents like these are not, unfortunately, uncommon. I hear about them from consumers every day. Insist that your care provider speak to you directly and include you in creating your health care plan. I recommend that everyone who experiences mental illness carry a list of all medications with them and a copy of your Mental Health Advanced Directive.
A Mental Health Advance Directive offers a clear written statement of an individual's medical treatment preferences or other expressed wishes or instructions. It can also be used to assign decision-making authority to another person who can act on that person's behalf during times of incapacitation.
I plan to appeal the decision to deny my life insurance coverage. It has taught me an important lesson about keeping current on what is in my medical files. Learn from my experience and keep up to date on what is in your files.
--Kristen Frame
Compeer Coordinator
Labels:
advanced directive,
bipolar,
eating disorder,
life insurance,
OCD,
psychiatrist,
psychogenic
Wednesday, October 8, 2008
Coming Out

A year ago this month, I came out. Not in the traditional sense of the word, I did not announce that I was gay. I told my parents and my friends, (and only some of my friends) that I have a mental illness.
This is National Mental Illness Awareness Week. It is also the time of year that Mental Health America prepares for its Annual Awards Dinner which will be held this year on November 13. Last year, I was recognized with a great honor, as Consumer of the Year. Before the announcement was made, Paddy Kutz, the Executive Director of the agency, where I was then a volunteer, asked me into her office.
When Paddy first asked me if I would feel comfortable accepting this recognition and the fact that it would require me to acknowledge my role as a consumer, I was a bit hesitant. I had not yet come out to my family and friends. I was concerned that people would only see me as my diagnosis and not be able to discern where it left off and my personality began.
A few people I told warned me that I would never be able to find work again, once the secret of my diagnosis was out. I would be socially ostracized. My husband and I like dogs better than most people, so I wasn’t really worried about that.
People have told me to say that I have anxieties-that I experience depression. Both of these statements are true. My friends were concerned that if I told my whole diagnosis, I would suffer social bias and additional fallout from the stigma of having a serious mental illness.
I decided that that I needed to address the stigma of mental illness in our community. So, I decided to state that I am a person who experiences bipolar disorder and obsessive-compulsive disorder.
I feel strongly that it is important to show yet another face of mental illness, to demonstrate that there are many faces of mental illness in our community and they belong to someone you know.
Mental Health America served 1 in six individuals in the county last year, that’s you or someone you know.
An equal number of men and women develop bipolar disorder and it occurs among all ages, ethnic groups and social classes. Approximately 2.5 million Americans live with this disorder, but the number of people affected is even greater.
People living with bipolar disorder experience alternating episodes of mania (severe highs), depression (severe lows) and mixed states, which contain elements of both.
If left untreated, people with bipolar disorder are at great risk for suicide, substance abuse, incarceration, and other harmful consequences. The mortality rate for people with untreated bipolar disorder is higher than it is for most types of heart disease and many types of cancers.
But with accurate diagnosis and treatment, people with bipolar disorder have better treatment success rates than people with heart disease. Essential components of the treatment process for people living with bipolar disorder include medication, psychotherapy, support groups, and education about the illness. It is estimated that 80 percent to 90 percent of people with bipolar disorder can be treated effectively with medication and psychotherapy.
Raising awareness of bipolar disorder is an important step towards promoting early detection and accurate diagnosis, which is why the National Alliance on Mental Illness (NAMI) created Bipolar Disorder Awareness Day, scheduled this year for Thursday, October 9.
The National Institute of Mental Health estimates that two percent of the U.S. population or one in 40 people experience Obsessive Compulsive Disorder, or OCD, in their lifetime. That is two to three times more common than schizophrenia or bipolar disorder.
Many people are familiar with the television series Monk, and its detective with his own form of OCD, but there are many manifestations of obsessive-compulsive disorder and individuals suffer to various degrees.
You never see successful people with bipolar disorder on TV or Film.
Bipolar disorder has caused the most serious episodes in my life, but even with years of treatment, OCD continues to cause me the most daily problems.
I thought that I would try to explain to you what is like to experience OCD, and then I realized that I cannot. Just as I cannot explain to my husband why the simple task of choosing a restaurant for lunch has frequently reduced me to tears, why I can’t eat at a salad bar or buffet, or an office party, why I can’t leave my dog over night, or have people in my house or the host of other rules that govern my daily life.
My husband, Graham, has patiently stood by me for 20 years, confused but supportive, as the rules change suddenly without explanation, it is one of the many reasons I adore him.
I’d like to thank Paddy Kutz for her encouragement for helping me to find the voice to speak. I’d like to thank my parents for continuing to support me. And most of all, I’d like to thank Graham who stands by me no matter what I say.
If you or anyone you know are concerned about depression or anxiety, please contact the Mental Health America office for more information. There is help. And if you experience a mental illness, I urge you to tell someone you know. You may be surprised at their reaction. And they may be surprised to learn that the face of mental illness is not so frightening, it is their roommate, their daughter, their co-worker or friend.
This is National Mental Illness Awareness Week. It is also the time of year that Mental Health America prepares for its Annual Awards Dinner which will be held this year on November 13. Last year, I was recognized with a great honor, as Consumer of the Year. Before the announcement was made, Paddy Kutz, the Executive Director of the agency, where I was then a volunteer, asked me into her office.
When Paddy first asked me if I would feel comfortable accepting this recognition and the fact that it would require me to acknowledge my role as a consumer, I was a bit hesitant. I had not yet come out to my family and friends. I was concerned that people would only see me as my diagnosis and not be able to discern where it left off and my personality began.
A few people I told warned me that I would never be able to find work again, once the secret of my diagnosis was out. I would be socially ostracized. My husband and I like dogs better than most people, so I wasn’t really worried about that.
People have told me to say that I have anxieties-that I experience depression. Both of these statements are true. My friends were concerned that if I told my whole diagnosis, I would suffer social bias and additional fallout from the stigma of having a serious mental illness.
I decided that that I needed to address the stigma of mental illness in our community. So, I decided to state that I am a person who experiences bipolar disorder and obsessive-compulsive disorder.
I feel strongly that it is important to show yet another face of mental illness, to demonstrate that there are many faces of mental illness in our community and they belong to someone you know.
Mental Health America served 1 in six individuals in the county last year, that’s you or someone you know.
An equal number of men and women develop bipolar disorder and it occurs among all ages, ethnic groups and social classes. Approximately 2.5 million Americans live with this disorder, but the number of people affected is even greater.
People living with bipolar disorder experience alternating episodes of mania (severe highs), depression (severe lows) and mixed states, which contain elements of both.
If left untreated, people with bipolar disorder are at great risk for suicide, substance abuse, incarceration, and other harmful consequences. The mortality rate for people with untreated bipolar disorder is higher than it is for most types of heart disease and many types of cancers.
But with accurate diagnosis and treatment, people with bipolar disorder have better treatment success rates than people with heart disease. Essential components of the treatment process for people living with bipolar disorder include medication, psychotherapy, support groups, and education about the illness. It is estimated that 80 percent to 90 percent of people with bipolar disorder can be treated effectively with medication and psychotherapy.
Raising awareness of bipolar disorder is an important step towards promoting early detection and accurate diagnosis, which is why the National Alliance on Mental Illness (NAMI) created Bipolar Disorder Awareness Day, scheduled this year for Thursday, October 9.
The National Institute of Mental Health estimates that two percent of the U.S. population or one in 40 people experience Obsessive Compulsive Disorder, or OCD, in their lifetime. That is two to three times more common than schizophrenia or bipolar disorder.
Many people are familiar with the television series Monk, and its detective with his own form of OCD, but there are many manifestations of obsessive-compulsive disorder and individuals suffer to various degrees.
You never see successful people with bipolar disorder on TV or Film.
Bipolar disorder has caused the most serious episodes in my life, but even with years of treatment, OCD continues to cause me the most daily problems.
I thought that I would try to explain to you what is like to experience OCD, and then I realized that I cannot. Just as I cannot explain to my husband why the simple task of choosing a restaurant for lunch has frequently reduced me to tears, why I can’t eat at a salad bar or buffet, or an office party, why I can’t leave my dog over night, or have people in my house or the host of other rules that govern my daily life.
My husband, Graham, has patiently stood by me for 20 years, confused but supportive, as the rules change suddenly without explanation, it is one of the many reasons I adore him.
I’d like to thank Paddy Kutz for her encouragement for helping me to find the voice to speak. I’d like to thank my parents for continuing to support me. And most of all, I’d like to thank Graham who stands by me no matter what I say.
If you or anyone you know are concerned about depression or anxiety, please contact the Mental Health America office for more information. There is help. And if you experience a mental illness, I urge you to tell someone you know. You may be surprised at their reaction. And they may be surprised to learn that the face of mental illness is not so frightening, it is their roommate, their daughter, their co-worker or friend.
--Kristen Frame
Compeer Coordinator
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